MORE than £10,000 has been raised in memory of a boy who died after developing a rare disease.

Danny Green, from Canvey, died aged 11 in Great Ormond Street Children’s Hospital, London.

The sport-mad youngster had been diagnosed with a brain tumour, but following surgery to remove it he was left with Posterior Fossa Syndrome (PFS).

The disease left him unable to communicate, move unaided, hold his head up, balance or walk.

Echo:

Following his tragic death in July 2012, parents Lisa and Chris set up the Danny Green Fund to raise awareness of PFS.

In what is the charity’s 10th anniversary - also the year Danny would have turned 21 - a special bike ride was held to raise cash for the fund. 

It saw friends and supporters saddle up and cycle 21 miles from Shoebury station to Canvey, finishing at the Lobster Smack pub.

The group of about 40 cyclists, which included Danny’s father and sister, all donned green clothing in memory of him and took around two-and-a-half hours to complete the ride.

“Our courageous little boy should have celebrated his 21st birthday this year,” Danny’s mum Lisa said.

“Thank you to everyone who took part and to everyone who has sponsored one of the team to raise over £10,000.

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“Your generosity will help to transform the lives of the children that we help every week, a very special gift that will stay with those children forever, the gift of a more independent life.”

Shey added: “It was a truly lovely day, surrounded by friends old and new. It is a day that will stay in our hearts forever.”

The charity has now raised more than £750,000 in the 10 years since Danny’s death.

“Marking Danny’s birthdays without him never gets easier, but we are comforted by the fact his legacy has raised all this money,” Lisa said.

Echo:

“After losing Danny, we wanted his life to make a difference and know that he hadn’t died in vain.”

So far the cycle ride has raised £11,271. 

The money will go towards providing physiotherapy and hydrotherapy to aid recovery from PFS and research to find a cure for the disease.

To donate, visit: https://www.justgiving.com/team/DGF21miler?fbclid=IwAR1AYHCkDwzmgv9m88BQOfxl8cEvkSpdFHHTY1av-SQUGCYlsoSJD488kJo