A BRAVE toddler battling a one in four million syndrome desperately needs a bone marrow transplant to save his life.

Little Reggie Toms was diagnosed with Wiskott Aldrich Syndrome in December last year, just a day after he turned one.

The shock diagnosis leaves the little fighter with a low platelets count and a weak immune system - leaving him highly susceptible to infection.

His family has been told he is unlikely to live beyond his teens.

The only hope of a cure lies with a complex bone marrow transplant operation, which will leave Reggie hospitalised at Great Ormond Street for three months.

Parents Lionel and Charlotte Toms, both 29, are taking the diagnosis in their stride, but have been forced to reach out due to their son’s hospital stay.

“We had to do a bit of research and meet the team at Great Ormond Street,” said Lionel.

“It only effects boys, although girls can be carriers.

“It is something that, as parents, you just have to fight.

“We have to keep going and aiming forward, taking it one day at a time.

“The syndrome itself is scary, the risk of infection is very high.

“It has turned our world upside down.”

Lionel, who works as a restaurant general manager, and Charlotte, a social worker, must take unpaid leave from their jobs while Reggie undergoes his lengthy and life-saving treatment.

Reggie is supported at home by his two brothers, George, five and Ernie, three months.

“Our boy is going to need his mummy and daddy, and so will his brothers,” said Lionel.

“We have always worked hard to make sure our boys have everything they need.

“The likelihood is we will struggle while not being able to work and travelling from home to hospital.

“Plus one of us will live there with Reg for three months.”

The hospital is at least two hours away from the couple’s Clacton home.

Reggie will undergo chemotherapy treatment to condition his body ahead of the transplant.

“If it is successful, Reggie should be 100 per cent cured,” said Lionel.

“He has to have this.

“But it has been a difficult decision for us.

“They have told us because the chemo is so strong, they have got to look at freezing his sperm as it will kill it.

“This is so he can have children in later life, it is crazy to even be talking about it.

He added: “He is a fighter and his family are with him all the way.”

To donate to Reggie’s cause, visit gofundme.com/regknockingoutwiskottaldrich